Monday, September 1, 2014

Finally.....A van

Sorry so late with this. Because of a local family, actually 2 local families and their friends and family we finally have a van. A wheelchair accessible van.
 Our local community is awesome. So thankful and humbled by those who are always there for us and the perfect strangers who made it their mission to make this happen.
Our friends threw a party. We got word out on the internet and on radio stations. 6 days later we had a van from an incredibly kind local couple and their family.... and here it is......
 The Jeremy Nichols Band Played and they were great!
 Local support from great friends who get it
 Local awesome people who also get it
Me and my girl taking a break
 This girl never lets me down
 Heather and Peter Caster and family put this all together and they were just wonderful
 A silent auction gift from a very kind stranger
Blizzard Entertainment silent auction gift
 The van! Big red. 1999 Ford E150 Econoline with only 25,000 miles
 A lift!!!!!
 Captain Chairs!
My spot!

I often think in this digital age that it is a shame that we don't send personalized thank you cards anymore. Id like to...I wanted to but there were just so many involved that chose to stay anonymous or were strangers to us.
If you were involved in any way...from working, entertaining,volunteering,sharing,donating....Bikini car washing... We are so grateful/ We do thank you with all of our hearts...and my neck and back!

Friday, August 22, 2014

A Day for Grandma

My 91 year old Grandma passed away in December. I knew when I was going to Washington that I would bring part of her with me. She loved the state and worked as a fruit picker and elevator operator near to where we were going to be staying. We took a lock of her hair, mine and Abby's along with a ring she gave me when I was 18 and a gold necklace to a meadow with a view of Mount Rainier. Near the top of Quartz mountain. These are pics from that field and the views from there. All pics were taken that day on that mountain....Love you Grandma! Thank you Irby family for doing this for me. It was a day of high emotions,incredible friendship and love.

The day before this adventure I had called my Aunt and told her the place wanst night. The town she had talked about. I just wasn't feeling it. It was a valley in the middle of a desert. I was very upset. I was hurting because I was only a month out from surgery. My Aunt reminded me that Grandma had worked in that town but always talked about the surrounding area. Clear lakes, Mountains,wildflower fields, waterfalls. She said specifically,"You'll know it when you find it."I talked to my family there that night and they told me the place had to be Quartz Mountain. We drove as far up that mountain as we could that day before snow blocked the path and I had an extreme panic attack. We went back down maybe a quarter of a mile and went to turn around in a wildflower meadow. I got out and walked around and knew. I had found it. A field of wildflowers, a clear lake, views of Mt Rainier, Mt Adams and the Cascades. We spent a good amount of time there that day and I had the breakdown moment I had needed since she left us.None of it would have been possible without Jerimarie. She gave me the box we put the items in. She and her daughter helped me pick wildflowers. She dug the hole for me. All for a woman that meant the world to me.The following are pics from that day.

Tuesday, August 19, 2014

What I did on my summer vacation

This summer has been pretty cool. We did a few things we've never done before. There is much more we would have like to have done and experienced but again...the old Mom cant take it right now.

I started Therapeutic Horseback Therapy. Its slightly different than Hippotherapy where we mostly rode. Now we have to play games, do a bunch of PT and OT from the horse and follow direction. I cant do the last for the most part but my new horse friends help me alot. I sure miss my Jeff and my Joan from Thursdays though!

We took a trip! My Mom had booked it before she found out about her surgery and when she went to cancel our friends said no way! They did every lift, every bath, every dressing and changed me every time I needed it. Such a blessing and help for us both!

 We went to a place in Washington called Camp Prime Time. Its a fully accessible camp and many of our friends we have met online go there. It was a heck of a distance but we don't regret it at all. Washington is beautiful. The weather is great. We didn't see one snake, rat or roach and ready for this??? No chiggers!
 Our Daphni Jo and my Mom
 Daph and me just chillen watchin Pooh
 Me and my Jerimarie
 Dalisa got this pic of me on a boat at Clear lake. Love it!
 My Moms thought this treehouse was the neatest thing ever. There are so many things with Rett you just assume we will never get to do. Oh yah? Well I played in a treehouse!
 Ramp all the way up!
 My Mom has to help me cause I cant really to slopes up or down or uneven ground

 Jerimarie knew we was coming but we surprised Robyn!
 In the tree!
 Waterfall coming off Clear Lake
 Rim Rock Lake nearby

 Giant rec room/therapy room
 Green Neon exit sign! I must have one! Coolest thing there
Struttin my stuff of an even floor

 Air hokey
Fooz ball
 My nig helper Jenelle's head kissin me
 My first roasted marshmallow with my friend Addy
 OMG can I have some more
 Was so good
 My Moms and her big undercover attempt to surprise our friend Robyn who just thought we were being weird!
Many thanks to everyone that helped me and my Mom so we could have this experience. Jerimarie,Arlo,Devin,Lola,Jenelle. You are awesome!